Landon will see the other retinal specialist on Monday morning. I am nervous about what he is going to tell us. I so desire for him to tell us he can fix Landon's retina, reattach it and move forward with fixing his cornea. I am trying not to get my hopes up, just take it as it comes. We are trusting God to do the right thing for our baby and to point us in the right direction; wherever that may be.
When our surgeon explained to us that he would need a corneal transplant, he also explained the risks and success rate; or lack there of. Children tend to reject corneal transplants 95% of the time. Mainly because they have such a robust immune system. It is considered a major surgery for them and requires a lot of "poking and crying in the office." That is the way his surgeon explained it to us. We could not see putting him through any more discomfort or torture for a 5% chance of success. So we have looked into this eye institute at Rochester NY simply because they have pioneered a device called the Keratoprosthesis. It is a clear plastic device that replaces the corneal transplant so that you don't have to worry about rejection. So that works
great for children! Of course this all hangs on the fact that someone has to repair his retina first.
So here we are with the nerves again. If he says no he can't repair his retina, do we go somewhere else, or are 2 no's enough? Do I drag him to a third retinal specialist out of state, or just let him continue to play and be a boy? How many no's do I need to hear before I say "okay?" I guess we'll wait and see; and pray for a YES!!
On a funny n0te, I have always said that I hope Landon gets his daddy's vision. I have been in glasses and contacts since I was four! I never wanted him to go through that. Look where we are now :) But Landon was playing at my mom's the other day and he walked over to something on the floor and picked it up and handed it to me and said "look!" (his new favorite word). He handed me the smallest piece of fuzz I had ever seen. I will never know how he saw it, but I think it was God telling me that even if he looses his eye later down the road; he sees better with one eye than I do with both!! I'm getting lasix on May 8th so maybe finally I will be able to see without enhancements. I am burning all paraphenalia that has anything to do with vision correction :)
Thank you for praying for us. We are hoping and praying for God's best for our baby!
Do not be afraid, only believe!
Mark 5:36
1 comment:
Hi Landon's Mommy,
Your friend Misty has been sending the prayer requests for little Landon to her aunt and her aunt sends the requests to me, along with a lot of other prayer warriors. So you see, God has many who are helping to 'hold up your arms' when you get tired and confused and frustrated. But I want you to know - just reading your blog is very encouraging to me and I'm sure many others, to see your trust in the Lord through this tragic trial that you are walking through. Landon is a little doll! :) As I was praying for Landon and for you and your family, the Lord gave me Jeremiah 29:11 "'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you; Plans to give you hope and a future.'"
I will continue to pray for your family and will watch expectantly to see God's mighty hand protecting little Landon and guiding and you and your husband with wisdom from the Lord.
It's all about Jesus!
Sandra Hill
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